Hospital Fundraising Art Exhibitions

I have been taking part in my hospital Fundraising for Research on Heart and Lung diseases for the second year and presenting 7 Acrylics on canvas. It’s been a tremendous time for me as painting is really my passion.

I have been able to focus and be creative. I had a great time. I painted a lot and long hours but it was all worth it. I lost the ability to stay standing as a normal person so I have decided to paint on smaller scale canvases.

I will prepare for next year exhibition as from january next year so I can go slowly and it will give me time to experiment a bit more on style and colors.

 

Exhibition Nov 2010 / Feb 2011 : Health Theme (Para-hut, hold your breath, Moral support)

 

 

 

 

 

 

Exhibition Nov 2011 / Jan 2012 : African theme (Build a world, Straight from the orchard, Simplicity, Daily News, Women of a Nation, Smiley, Exile)

Wheezing me !

Well, my lungs sure have their own agenda and I find myself wheezing all the time. As soon as I wake up till I go to sleep at night. Before I could wheeze and it would stop. Now it does not stop and there is no rest. I blame it on the weather because this period of the year is bad for me. I thought it was the food I ate but I’m wheezing even if I’m not eating.

Fortunately I can sleep with my Vpap on, most of the time. When I am totally short of breath, I start sleeping sitted till it calms down. Because when it gets like even the inhalers are not sufficient.

I must say, I have had more and more asthma attacks these past years and it can happen anytime. If my children are around they get scared so I hope my lungs will be calm and collected for this coming Christmas celebration.

INR on a low slide

During the past months visits my INR kept going lower and lower. I was happy I had the two months test and that was good because it meant there was some kind of stability running through my veins. Well, it was short lived. Three weeks ago, my INR was at the limit of the low range which meant I had to be back on the alternative dosage and that meant a higher dosage too.
Then I went on thinking too much about all this. I must say that the INR waiting room is full of scary people. No one is really smiling and nobody talks to you. I know it’s early morning but still, a hello and a smile would be nice. But again people are suffering, it shows also on their face so I just read my book or play with my Iphone and wait for my turn. I will go for an INR next week and hopefully it will have gone up again. I seriously feel liquified :( !

Ultimate unwellness

I had two really bad days recently and I nearly went to the ER. One when I felt suddenly so sick, aching all over my body and having nauseas. I had a terrible pain on my left side and every time I breathed I was in so much pain. I called Chris and went to lie down and put on my VPAP. The rest and the ventilation help to clear my lungs and bad stuff came out. Since that day, I have been feeling unwell.

Then, followed the day where I was dizzy all the time and I felt so tired and once again the body was aching all over and I was so short of breath. I did not want to go to the ER even though it would have been wise, because my daughter was graduation a few days later and in no way I was going to miss that day. That day I was unable to put my VPAP on because I could not breath with it

That feeling of unwellness lingers on even though I feel better. The wheezing is pretty much a daily happening and the aching all over the body too despite all the prescribed strong painkillers I take four times a day. Then the explanation may be simple. The Mirena has been playing hide and seek with my body that the all thing may well be connected.

I was so pale when I went out for the graduation ceremonies of my children that everybody was worried. Sad really when it’s a great day in our family. I have the greatest family and I hope one day I can be more fun ;)

Postponed pulmonary rehab

The physio contacted me and we agreed that I must gain some strength before I can anything else. That means trying to stay standing as much as I can to gain strength in this body of mine that seems to have a mind of his own.

So far, I have been so weak. I went to my children’s graduation and staying standing and walking was not easy.

So I take it one day at a time and try my best to be up regularly so I can move my legs. If I want to cook I always end up in agony but at least I made the effort and that alone keeps me going.

Asthma clinic

A few weeks ago, I saw a new specialist in the OPD clinic, a lady who was so nice. We talked about health and life. Wow, it was so refreshing! I wonder why not more specialists are like her.

My stats were my normal me so that’s ok. The wheezing was pretty bad but the weather changes affect me a lot and the asthma gets a bit out of hands. As the cold weather sets in, it will get worse like every single year so I’m used to it by now. I just have to remain calm and collected and that is not really me :) . I was given antibiotics in case everything degenerates as it may if the wheezing goes on like that.  She was pleased that I lost more than10kgs since my last visit and that was a first in my weight problem history. In fact I lost nearly 20kgs since I started to diet and went on with Weight Watchers so I’m quite confident this excess weight will keep on his path to better pastures ;) .

I will have a bone scan soon because the others specialists want me to start taking Prednisone daily but she agrees with me that if I can do without it it’s better with all the medication I’m already taking every single day.

She also wants me to do the pulmonary physiotherapy. She decided to see me at the beginning of next year instead of later to keep an eye on things how she put it.

It makes all the difference when doctors are actually caring and you’re not just a number. She gave me a direct access to the OPD clinic so that’s reassuring. I was supposed to have one but nobody ever told me.